Acoustic Neuroma Links

British Acoustic Neuroma Association

Albinism Links

Albinism Fellowship

Allergy Links

Allergy UK
Anaphylaxis Campaign
British Society for Allergy & Clinical Immunology

Alopecia Links

Alopecia Awareness
Alopecia UK

Alpha-1 Antitrypsin Deficiency Links

Alpha-1 UK Support Group

Androgen Insensitivity Syndrome Links

Androgen Insensitivity Syndrome

Aplastic Anaemia Links

Aplastic Anaemia Trust

Arthritis Links

Arthritis Care
Arthritis Research UK
Children’s Chronic Arthritis Association

Asthma Links

Asthma UK

Ataxia Links

Ataxia-Telangiectasia Society
Ataxia UK

Back Pain Links


Behcet’s Syndrome Links

Behcet’s Syndrome Society

Bladder and Bowel Links

Bladder and Bowel Foundation
Crohn’s and Colitis UK
Crohns in Childhood Research Association
Haemorrhoid Centre, The
Hirschsprung’s & Mobility Disorders Support Network
IBD Passport
National Institute of Diabetes and Digestive and Kidney Diseases

Blood Pressure Links

Blood Pressure UK
Blood pressure/Easy health
British Hypertension Society

Brittle Bone Links

Brittle Bone Society

Cancer Links

About Brachytherapy
Action Against Breast Cancer
Action against male cancer
African Caribbean Leukaemia
Anthony Nolan
Barrett’s Oesophagus Campaign
Bart’s Mesothelioma Research
Bone Cancer Research Trust
Bowel Cancer Information
Bowel Cancer UK
Brain Tumour Charity, The
Brain Tumour Research
Breast Cancer Now
Breast cancer
Breast Cancer Campaign
Breast examination/Easy health
British Association of Cancer Surgery
Cancer Black Care
Cancer information service
Cancer Laryngectomee Trust
Cancer Research UK
Cancer/Easy health
Central & East London Breast Screening Service
Childhood Eye Cancer Trust, The
Children’s Leukaemia Society
Christie Hospital NHS Trust
Eve Appeal, The
Force Cancer Charity
Health Professionals Section, cancer services in primary care
Hereditary Breast Cancer Helpline
Hope Support Services
Institute of Cancer Research
International Myeloma Foundation
JTV Cancer Support
Kidney Cancer UK
Leukaemia and Lymphoma Research
Leukaemia Care
Lymphoma Association
Maggie’s Cancer Caring Centres
Marie Curie UK
Mayo Clinic – Diseases & Conditions, The
NHS cancer screening programme
Sarcoma UK
South East Scotland Cancer Network
The Roy Castle Lung Cancer Foundation
UK charity that supports people with cancer and their families
UK Lung Cancer Coalition

Carpal Tunnel Syndrome Links

Cauda Equina Syndrome Links

Cauda Equina Syndrome

Cleft Lip & Palate Links

Cleft Lip & Palate Association

Coeliac Disease and Dermatitis Herpetiformis Links

Coeliac UK

Congenital Adrenal Hyperplasia Links

Living with Congenital Adrenal Hyperplasia

Congenital Cytomegalovirus Links

CMV Action UK

Cornelia de Lange Syndrome Links

Cornelia de Lange Syndrome Foundation

Creutzfeld-Jakob Disease Links

Creutzfeld Jakob Disease: statistics on incidence

Dental Care Links

Dental Complaints Service
Dental Fear Central
Dental Phobia

Diabetes Links

Diabetes Bible
Diabetes Research and Wellness Foundation
Diabetes UK
Insulin Dependent Diabetes Trust
Juvenile Diabetes Research Foundation
Know Diabetes

Digestive Disorder Links


Disability Links

Ableize Disability and Mobility Directory
Action on Elder Abuse
An Informational Resource for Green Paraplegics
Assist UK
Barchester Healthcare Foundation
Brain Injury Hub
Brain and Spinal Injury Charity
Brain and Spine Foundation
Brain Injury Rehabilitation Trust
British Association of Occupational Therapists
British Deaf Association Sign Community
British Dyslexia Association
Centre of Excellence for Sensory Impairment – COES!
Charlotte’s Tandems
Contact a Family
Disability Rights UK
Disabled Golf Association
Disabled Living
Disabled Living Foundation
Disabled Parents Network
Dogs for the Disabled
Down Syndrome International
Down’s Heart Group
Down’s Syndrome Research Foundation
Down’s Syndrome Association
English Federation of Disability Sport
Driving Mobility
Going For Independence
Guide Dogs
Guide Dogs for the Blind Association
Hibbs Lupus Trust, The
Hirschsprung’s & Mobility Disorders Support Network
Hypermobility Syndrome Association, The
Independent Age
Information about Lupus
Limbless Association
Living Made Easy
Multiple Sclerosis Society
Muscular Dystrophy UK
Royal Association for Disability and Rehabilitation
Royal National Institute for Deaf People
Royal National Institute for the Blind
Sequal Trust
The national disability organisation whose focus is people with cerebral palsy
The UK’s leading organisation working for people with deaf, blindness and associated disabilities

Disfigurement of the face or body Links

Changing Faces

Disorders of Sex Development Links

DSD Families

Duchenne Muscular Dystrophy (DMD) Links

Duchenne Family Support Group

Dupuytren’s Disease Links

Dupuytren Society

Dystonia Links

Dystonia Society

Ectodermal Dysplasia Links

Ectodermal Dysplasia Society

Ehlers-Danlos Syndrome Links

Ehlers-Danlos Syndrome

Encephalitis Links

Encephalitis Information Resource

Endometriosis Links

Endometriosis UK

Epilepsy Links

Epilepsy Action
Epilepsy Research UK
Epilepsy Scotland
Epilepsy Society, The

Fibromyalgia Links

Fibromyalgia Association UK
Fibromyalgia Support for Surrey and Sussex

Foetal Alcohol Spectrum Links

FASD Trust

Gaucher’s disease Links

Gaucher Association

Guillan-Barré Syndrome Links

Guillan-Barré Syndrome Support Group

Haemophilia Links

Haemophilia Care

Hearing Links

Action on Hearing Loss
British Tinnitus Association
Deafblind UK
Deafness Research UK
Hearing Dogs for Deaf People
Hearing Link

Heart Links

British Heart Foundation
Cardiac Risk in the Young
Cardiomyopathy Association
Children’s Heart Federation
Ebstein’s Anomaly
Guy’s and St Thomas’ – male cardiovascular health clinic
Heart Research UK
Hearts of Positive Energy
Little Heart Matter
Somerville Foundation
Tiny Tickers

Hereditary Angioedema Links


Herpes Simplex Links

Herpes Viruses Association

HIV and AIDS Links

Body and Soul Charity
British Association for Sexual Health & HIV
Centre for All Families Positive Health
HIV Wakeup
Positively UK

Hughes Syndrome Links

Hughes Syndrome Foundation

Huntington’s disease Links

Huntington’s Disease Association

Kawasaki Disease Links

Kawasaki Support Group UK

Kidney Links

British Kidney Patient Association
British Renal Society, The
Kidney Research UK
National Institute of Diabetes and Digestive and Kidney Diseases

Laurence-Moon-Bardet-Biedl Syndrome Links

LMBB Society

Liver Links

British Liver Trust
Children’s Liver Disease Foundation
Greater Manchester Hepatitis C Strategy
Hepatitis Central News
Hepatitis C Trust, The
UK Hepatitis C Forum

Lung Links

British Lung Foundation
LAM Action

Lyme Disease Links

CDC Lyme Disease
Lyme Disease Action

Lymphoedema Links

British Lymphology Society
Lymphoedema Network Northern Ireland
Lymphoedema Support

Marfan Syndrome Links

Marfan Association
Marfan Foundation

Metachromatic Leukodystrophy Links

MLD Support Association UK

Myalgic Encephalomyelitis (M.E.) Links

Action for ME
Association of Young People with ME
Invest in ME
M.E. Association
ME Research UK

Myelodysplastic Syndrome (MDS) Links

MDS UK Patient Support Group

Polio Links

British Polio Fellowship

Porphyria Links

British Porphyria Association

Pregnancy Links

Action on Pre-eclampsia
Action Postpartum Psychosis
Antenatal Results and Choices
Association for Post Natal Illness
Association of Early Pregnancy Units
Baby Centre
Birth Trauma Association
Bliss – the premature baby charity
bpas (British Pregnancy Advisory Service)
Breastfeeding Network, The
Daisy Foundation, The
Daycare Trust
Ectopic Pregnancy Foundation
Ectopic Pregnancy Trust
FPA (Family Planning Association)
Infertility Network UK
La Leche League GB
Lactation Consultants of Great Britain
Living with Reflux
Marie Stopes International
Scottish Care and Information on Miscarriage
Splash Project

Respiratory Disorder Links

British Thoracic Society

Sarcoidosis Links

Sarcoidosis Association

Scleroderma Links

Scleroderma & Raynaud’s UK

Sight Loss Links

Action for Blind People
Bournemouth Blind Society
British Blind Sport
Bucks Vision
Colour Blind Awareness
Fight for Sight
Look After Your Eyes

Sjogren’s Syndrome Links

British Sjogren’s Syndrome Association

Skin Links

British Association of Dermatologists, The
British Skin Foundation
British Society for Paediatric Dermatology
Eczema Outreach Scotland

Speech and Communication Links

Aphasia Now
British Dyslexia Association
Dyslexia Institute
Dyspraxia Foundation
I Can

Spinal Injury and Spinal Conditions Links

British Association of Spine Surgeons
British Scoliosis Society, The
Scoliosis Association


Behind the Gray
Chest, Heart and Stroke Scotland
Different Strokes
NHS Choices – Stroke
The Stroke Association

Thyroid Disorder Links

British Thyroid Foundation

Vascular Disease Links

Circulation Foundation

Vascular Ehlers-danlos Syndrome Links

Annabelle’s Challenge

Vulval Disease

British Society for the Study of Vulval Disease