Acoustic Neuroma Links

British Acoustic Neuroma Association  

Albinism Links

Albinism Fellowship  

Allergy Links

Allergy UK  
Anaphylaxis Campaign  
British Society for Allergy & Clinical Immunology  

Alopecia Links

Alopecia Awareness  
Alopecia UK  

Alpha-1 Antitrypsin Deficiency Links

Alpha-1 UK Support Group  

Androgen Insensitivity Syndrome Links

Androgen Insensitivity Syndrome  

Aplastic Anaemia Links

Aplastic Anaemia Trust  

Arthritis Links

Arthritis Care  
Arthritis Research UK  
Children’s Chronic Arthritis Association  

Asthma Links

Asthma UK  

Ataxia Links

Ataxia-Telangiectasia Society  
Ataxia UK  

Back Pain Links


Behcet’s Syndrome Links

Behcet’s Syndrome Society  

Bladder and Bowel Links

Bladder and Bowel Foundation  
Crohn’s and Colitis UK  
Crohns in Childhood Research Association  
Haemorrhoid Centre, The  
Hirschsprung’s & Mobility Disorders Support Network  
IBD Passport  
National Institute of Diabetes and Digestive and Kidney Diseases  

Blood Pressure Links

Blood Pressure UK  
Blood pressure/Easy health  
British Hypertension Society  

Brittle Bone Links

Brittle Bone Society  

Cancer Links

About Brachytherapy  
Action Against Breast Cancer  
Action against male cancer  
African Caribbean Leukaemia  
Anthony Nolan  
Barrett’s Oesophagus Campaign  
Bart’s Mesothelioma Research  
Bone Cancer Research Trust  
Bowel Cancer Information  
Bowel Cancer UK  
Brain Tumour Charity, The  
Brain Tumour Research  
Breast Cancer Now  
Breast cancer  
Breast Cancer Campaign  
Breast examination/Easy health  
British Association of Cancer Surgery  
Cancer Black Care  
Cancer information service  
Cancer Laryngectomee Trust  
Cancer Research UK  
Cancer/Easy health  
Central & East London Breast Screening Service  
Childhood Eye Cancer Trust, The  
Children’s Leukaemia Society  
Christie Hospital NHS Trust  
Eve Appeal, The  
Force Cancer Charity  
Health Professionals Section, cancer services in primary care  
Hereditary Breast Cancer Helpline  
Hope Support Services  
Institute of Cancer Research  
International Myeloma Foundation  
JTV Cancer Support  
Kidney Cancer UK  
Leukaemia and Lymphoma Research  
Leukaemia Care  
Lymphoma Association  
Maggie’s Cancer Caring Centres  
Marie Curie UK  
Mayo Clinic – Diseases & Conditions, The  
NHS cancer screening programme  
Sarcoma UK  
South East Scotland Cancer Network  
The Roy Castle Lung Cancer Foundation  
UK charity that supports people with cancer and their families  
UK Lung Cancer Coalition  

Carpal Tunnel Syndrome Links  

Cauda Equina Syndrome Links

Cauda Equina Syndrome  

Cleft Lip & Palate Links

Cleft Lip & Palate Association  

Coeliac Disease and Dermatitis Herpetiformis Links

Coeliac UK  

Congenital Adrenal Hyperplasia Links

Living with Congenital Adrenal Hyperplasia  

Congenital Cytomegalovirus Links

CMV Action UK  

Cornelia de Lange Syndrome Links

Cornelia de Lange Syndrome Foundation  

Creutzfeld-Jakob Disease Links

Creutzfeld Jakob Disease: statistics on incidence  

Dental Care Links

Dental Complaints Service  
Dental Fear Central  
Dental Phobia  

Diabetes Links

Diabetes Bible  
Diabetes Research and Wellness Foundation  
Diabetes UK  
Insulin Dependent Diabetes Trust  
Juvenile Diabetes Research Foundation  
Know Diabetes  

Digestive Disorder Links


Disability Links

Ableize Disability and Mobility Directory  
Action on Elder Abuse  
An Informational Resource for Green Paraplegics  
Assist UK  
Barchester Healthcare Foundation  
Brain Injury Hub  
Brain and Spinal Injury Charity  
Brain and Spine Foundation  
Brain Injury Rehabilitation Trust  
British Association of Occupational Therapists  
British Deaf Association Sign Community  
British Dyslexia Association  
Centre of Excellence for Sensory Impairment – COES!  
Charlotte’s Tandems  
Contact a Family  
Disability Rights UK  
Disabled Golf Association  
Disabled Living  
Disabled Living Foundation  
Disabled Parents Network  
Dogs for the Disabled  
Down Syndrome International  
Down’s Heart Group  
Down’s Syndrome Research Foundation  
Down’s Syndrome Association  
English Federation of Disability Sport  
Driving Mobility  
Going For Independence  
Guide Dogs  
Guide Dogs for the Blind Association  
Hibbs Lupus Trust, The  
Hirschsprung’s & Mobility Disorders Support Network  
Hypermobility Syndrome Association, The  
Independent Age  
Information about Lupus  
Limbless Association  
Living Made Easy  
Multiple Sclerosis Society  
Muscular Dystrophy UK  
Royal Association for Disability and Rehabilitation  
Royal National Institute for Deaf People  
Royal National Institute for the Blind  
Sequal Trust  
The national disability organisation whose focus is people with cerebral palsy  
The UK’s leading organisation working for people with deaf, blindness and associated disabilities  

Disfigurement of the face or body Links

Changing Faces  

Disorders of Sex Development Links

DSD Families  

Duchenne Muscular Dystrophy (DMD) Links

Duchenne Family Support Group  

Dupuytren’s Disease Links

Dupuytren Society  

Dystonia Links

Dystonia Society  

Ectodermal Dysplasia Links

Ectodermal Dysplasia Society  

Ehlers-Danlos Syndrome Links

Ehlers-Danlos Syndrome  

Encephalitis Links

Encephalitis Information Resource  

Endometriosis Links

Endometriosis UK  

Epilepsy Links

Epilepsy Action  
Epilepsy Research UK  
Epilepsy Scotland  
Epilepsy Society, The  

Fibromyalgia Links

Fibromyalgia Association UK  
Fibromyalgia Support for Surrey and Sussex  

Foetal Alcohol Spectrum Links

FASD Trust  

Gaucher’s disease Links

Gaucher Association  

Guillan-Barré Syndrome Links

Guillan-Barré Syndrome Support Group  

Haemophilia Links

Haemophilia Care  

Hearing Links

Action on Hearing Loss  
British Tinnitus Association  
Deafblind UK  
Deafness Research UK  
Hearing Dogs for Deaf People  
Hearing Link  

Heart Links

British Heart Foundation  
Cardiac Risk in the Young  
Cardiomyopathy Association  
Children’s Heart Federation  
Ebstein’s Anomaly  
Guy’s and St Thomas’ – male cardiovascular health clinic  
Heart Research UK  
Hearts of Positive Energy  
Little Heart Matter  
Somerville Foundation  
Tiny Tickers  

Hereditary Angioedema Links


Herpes Simplex Links

Herpes Viruses Association  

HIV and AIDS Links

Body and Soul Charity  
British Association for Sexual Health & HIV  
Centre for All Families Positive Health  
HIV Wakeup  
Positively UK  

Hughes Syndrome Links

Hughes Syndrome Foundation  

Huntington’s disease Links

Huntington’s Disease Association  

Kawasaki Disease Links

Kawasaki Support Group UK  

Kidney Links

British Kidney Patient Association  
British Renal Society, The  
Kidney Research UK  
National Institute of Diabetes and Digestive and Kidney Diseases  

Laurence-Moon-Bardet-Biedl Syndrome Links

LMBB Society  

Liver Links

British Liver Trust  
Children’s Liver Disease Foundation  
Greater Manchester Hepatitis C Strategy  
Hepatitis Central News  
Hepatitis C Trust, The  
UK Hepatitis C Forum  

Lung Links

British Lung Foundation  
LAM Action  

Lyme Disease Links

CDC Lyme Disease  
Lyme Disease Action  

Lymphoedema Links

British Lymphology Society  
Lymphoedema Network Northern Ireland  
Lymphoedema Support  

Marfan Syndrome Links

Marfan Association  
Marfan Foundation  

Metachromatic Leukodystrophy Links

MLD Support Association UK  

Myalgic Encephalomyelitis (M.E.) Links

Action for ME  
Association of Young People with ME  
Invest in ME  
M.E. Association  
ME Research UK  

Myelodysplastic Syndrome (MDS) Links

MDS UK Patient Support Group  

Polio Links

British Polio Fellowship  

Porphyria Links

British Porphyria Association  

Pregnancy Links

Action on Pre-eclampsia  
Action Postpartum Psychosis  
Antenatal Results and Choices  
Association for Post Natal Illness  
Association of Early Pregnancy Units  
Baby Centre  
Birth Trauma Association  
Bliss – the premature baby charity  
bpas (British Pregnancy Advisory Service)  
Breastfeeding Network, The  
Daisy Foundation, The  
Daycare Trust  
Ectopic Pregnancy Foundation  
Ectopic Pregnancy Trust  
FPA (Family Planning Association)  
Infertility Network UK  
La Leche League GB  
Lactation Consultants of Great Britain  
Living with Reflux  
Marie Stopes International  
Scottish Care and Information on Miscarriage  
Splash Project  

Respiratory Disorder Links

British Thoracic Society  

Sarcoidosis Links

Sarcoidosis Association  

Scleroderma Links

Scleroderma & Raynaud’s UK  

Sight Loss Links

Action for Blind People  
Bournemouth Blind Society  
British Blind Sport  
Bucks Vision  
Colour Blind Awareness  
Fight for Sight  
Look After Your Eyes  

Sjogren’s Syndrome Links

British Sjogren’s Syndrome Association  

Skin Links

British Association of Dermatologists, The  
British Skin Foundation  
British Society for Paediatric Dermatology  
Eczema Outreach Scotland  

Speech and Communication Links

Aphasia Now  
British Dyslexia Association  
Dyslexia Institute  
Dyspraxia Foundation  
I Can  

Spinal Injury and Spinal Conditions Links

British Association of Spine Surgeons  
British Scoliosis Society, The  
Scoliosis Association  


Behind the Gray  
Chest, Heart and Stroke Scotland  
Different Strokes  
NHS Choices – Stroke  
The Stroke Association  

Thyroid Disorder Links

British Thyroid Foundation  

Vascular Disease Links

Circulation Foundation  

Vascular Ehlers-danlos Syndrome Links

Annabelle’s Challenge  

Vulval Disease

British Society for the Study of Vulval Disease